FOR IMMEDIATE RELEASE | 10 OCTOBER 2018
ASG SPORT SOLUTIONS TO PARTNER WITH THE OLIVE CHILDREN’S FOUNDATION
“Save a Life, it’s in your Blood.”
The Olive Children’s Foundation is proud to announce its official partnership with ASG Sport Solutions.
Since its founding in 2006, ASG Sport Solutions has been as passionate about development and making a felt difference to the community, as it is about cycling. ASG is known for bringing innovative, sometimes rare, brands to consumers, making a partnership with the Olive Children’s Foundation (OCF) a perfect fit as it was established to bring relief to families of children with rare and life threatening conditions.
Olive, the namesake of the foundation, was just six weeks old when she went into heart failure due to the aneamia caused by a rare genetic disorder called Diamond-Blackfan Anaemia (DBA). DBA results in bone marrow failure, early onset cancers and congenital abnormalities, which require patients to receive regular blood transfusions and medical treatment throughout their lives. Today, at two years old, Olive has had 26 blood transfusions and spent over 137 days in hospital – a large portion of her little life.
Recognising the lack of support and expertise available for this specific disorder and others like it, the Olive Children’s Foundation has three main goals:
- To create a space for doctors to research and learn about incredibly rare conditions like DBA
- To establish a registry across Africa to enable relief of the diagnosis and treatment costs and uncertainty for the families of affected children, and
- To create an out-patient infusion clinic for children requiring regular blood transfusions and chronic IV therapies.
It is in particular this last vision of the Olive Children’s Infusion Clinic that has the potential of becoming a reality through the generous partnership with ASG Sport Solutions. The Olive Children’s Infusion Clinic would be South Africa’s first ever paediatric day infusion centre, and would offer a supportive space where patients can be attended to in a non-threatening and supportive environment, without the anxiety that usually accompanies such procedures. The extensive paperwork, delayed lead times for blood arrival and long waits will all be resolved in this clinic, which plans to offer a happy and informative space that is as close to normal life as can be.
The development of the DBA registry and the building of the clinic can only be done through generous donations, but there are many other ways that you can make a difference to each young life that is affected by rare diseases:
- • Sign up as a blood donor for free (via SANBS)
- • Register as a bone marrow donor or sponsor someone else if you are not eligible, as there is a cost involved. (via SABMR)
- • Contribute via the OCF Given Gain page via Rare Diseases South Africa
- • Contribute to the Olive Children’s Foundation NPC (non-profitable company)
- • Like and share Olive’s story on social media to educate more people about rare diseases like DBA and where they can get support.
- • Purchase OCF branded cycling kit from ASG Sport Solutions via their website www.asgsorts.co.za
For more information:
Visit the website at www.olivechildrensfoundaiton.org
Share the journey on Facebook: https://www.facebook.com/OliveChildrensFoundation/